This is my sad story, written by a doctor specializing in internal medicine and diabetics. It is about our struggle, mine and my husband’s , an academic teacher from the Maritime Academy, diagnosed with DM type 2. We live in Europe, Poland, and we were encouraged to share our story by Myotonic Dystrophy Foundation. I have written almost the same story for my friends in Polish, some of them doctors, like me. By sharing our story I would like to raise the public awareness on DM 1 and 2 , familiarize people with the problem of the society of people who suffer from this rare disease in my country.
In the pictures:
1. My husband as a young, healthy man, years ago
2. Antibodies against various parts of tissues results - nearly all negative
3. One of my husband’s CPK test results / Creatine phosphokinase / - a high rise
4. EMG result
5. Genetic test result confirming DM 2 diagnosis
6. Łukasz Sznajder’s blog on DM
7. Łukasz Sznajder short CV taken of the MDF website
8. An image taken from the Łukasz Sznajder's lecture. The lecture dealt with diagnosing of DM in Poland. The image shows a family of my friend Asia from Toruń in Poland whose husband - Tomek and son Antoś were diagnosed with DM 1 in 2016.
9. MD Foundation homepage which inspired me to create this album.
10,11. The description of DM 1 and DM2 in English – the 1st source of my knowledge about these diseases.
12. A youtube movie "HERO" about people with DM, their families and scientists who explore and try to find cure for these two diseases.
16. A fb group - people with DM, their families and friends from Poland
13, 14, 15, 17 , 18, 19, 20, 21 - everyday life with DM and many obstacles to be overcome
Let me say a big " thank you " to my friend Margaret who was proofreading my English version of the story on dying muscles.